FreeTender
Accepting bidsgrantUnited States

Long-term health outcomes of people living with spina bifida

Issued by Centers for Disease Control - NCBDDD · via Grants.gov — US federal funding opportunities

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Published
26 Aug 2026
Closes
26 Oct 2026, 23:59 UTC
Value
USD 3,000,000
Reference
CDC-RFA-DD-26-0222
Location
United States
Sector
Healthcare & Pharma

Details

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB

Estimated total programme funding: USD 3000000

Award range: USD 100000 – 300000

Expected number of awards: 19

CFDA number(s): 93.073

Federal funding opportunity published on Grants.gov. Applications are submitted through Grants.gov — see the official listing.

Context for bidders

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